Doctors are stressing the importance of diagnosing a genetic syndrome that can have deadly consequences.
Marfan Syndrome is commonly diagnosed by people with unusual height and long limbs.
It affects connective tissue which makes for incredible flexibility.
Athletes, specifically tall basketball and volleyball players, can often have the syndrome and not even know it.
But strenuous exercise can have deadly consequences to those with the syndrome.
There is a risk of aortic rupture, which can be fatal.
A drug is being tested on children and teens which helps prevent damage to the heart and lungs.
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